PubTransformer

A site to transform Pubmed publications into these bibliographic reference formats: ADS, BibTeX, EndNote, ISI used by the Web of Knowledge, RIS, MEDLINE, Microsoft's Word 2007 XML.

Neuro-QOL: quality of life item banks for adults with neurological disorders: item development and calibrations based upon clinical and general population testing.

Abstract Neuro-QOL provides a clinically relevant and psychometrically robust health-related quality of life (HRQL) assessment tool for both adults and children with common neurological disorders. We now report the psychometric results for the adult tools.
PMID
Related Publications

Validity of the Neurology Quality-of-Life (Neuro-QoL) measurement system in adult epilepsy.

Development and psychometric characteristics of the SCI-QOL Ability to Participate and Satisfaction with Social Roles and Activities item banks and short forms.

Quality-of-life measures in children with neurological conditions: pediatric Neuro-QOL.

Assessment of health-related quality of life in arthritis: conceptualization and development of five item banks using item response theory.

Methodology for the development and calibration of the SCI-QOL item banks.

Authors

Mayor MeshTerms

Quality of Life

Keywords
Journal Title quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation
Publication Year Start




PMID- 21874314
OWN - NLM
STAT- MEDLINE
DCOM- 20120720
LR  - 20170220
IS  - 1573-2649 (Electronic)
IS  - 0962-9343 (Linking)
VI  - 21
IP  - 3
DP  - 2012 Apr
TI  - Neuro-QOL: quality of life item banks for adults with neurological disorders:
      item development and calibrations based upon clinical and general population
      testing.
PG  - 475-86
LID - 10.1007/s11136-011-9958-8 [doi]
AB  - PURPOSE: Neuro-QOL provides a clinically relevant and psychometrically robust
      health-related quality of life (HRQL) assessment tool for both adults and
      children with common neurological disorders. We now report the psychometric
      results for the adult tools. METHODS: An extensive research, survey and consensus
      process was used to produce a list of 5 priority adult neurological conditions
      (stroke, multiple sclerosis, Parkinson's disease, epilepsy and ALS). We
      identified relevant health related quality of life (HRQL) domains through
      multiple methods and data sources including a comprehensive review of the
      literature and literature search, expert interviews and surveys and patient and
      caregiver focus groups. The final domain framework consisted of 17 domains of
      Physical, Mental and Social health. There were five phases of item development:
      (1) identification of 3,482 extant items, (2) item classification and selection, 
      (3) item review and revision, (4) cognitive interviews with 63 patients to assess
      their understanding of individual items and (5) field testing of 432
      representative items. PARTICIPANTS AND PROCEDURES: Participants were drawn from
      the US general population and clinical settings, and included both English and
      Spanish speaking subjects (N = 3,246). Confirmatory factor analysis (CFA) was
      used to evaluate the dimensionality of unidimensional domains. Where the domain
      structure was previously unknown, the dataset was split and first analyzed with
      exploratory factor analysis and then CFA. Samejima's graded response model (GRM) 
      was used to calculate IRT parameters. We further evaluated differential item
      functioning (DIF) on gender, education and age. RESULTS: Thirteen unidimensional 
      calibrated item banks consisting of 297 items were developed. All of the tested
      item banks had high reliability and few or no locally dependent items. The range 
      of item slopes and thresholds with good information are reported for each of the 
      item banks. The banks can support CAT and the development of short forms.
      CONCLUSION: The Neuro-QOL measurement system provides item banks and short forms 
      that enable PRO measurement in neurological research, minimizes patient burden
      and can be used to create multiple instrument types minimizing standard error.
      The 17 adult measures include 13 calibrated item banks, 3 item pools available
      for calibration work by others, and 1 stand-alone scale (index). The Neuro-QOL
      instruments provide a "common metric" of representative concepts for use across
      patient groups in different studies.
FAU - Gershon, Richard C
AU  - Gershon RC
AD  - Northwestern University, Chicago, IL, USA. [email protected]
FAU - Lai, Jin Shei
AU  - Lai JS
FAU - Bode, Rita
AU  - Bode R
FAU - Choi, Seung
AU  - Choi S
FAU - Moy, Claudia
AU  - Moy C
FAU - Bleck, Tom
AU  - Bleck T
FAU - Miller, Deborah
AU  - Miller D
FAU - Peterman, Amy
AU  - Peterman A
FAU - Cella, David
AU  - Cella D
LA  - eng
GR  - N01 NS042360/NS/NINDS NIH HHS/United States
PT  - Journal Article
DEP - 20110827
PL  - Netherlands
TA  - Qual Life Res
JT  - Quality of life research : an international journal of quality of life aspects of
      treatment, care and rehabilitation
JID - 9210257
SB  - IM
MH  - Activities of Daily Living
MH  - Adult
MH  - Age Factors
MH  - Anxiety/psychology
MH  - Calibration
MH  - Chi-Square Distribution
MH  - Cognition
MH  - Depression/psychology
MH  - Factor Analysis, Statistical
MH  - Fatigue/psychology
MH  - Female
MH  - Humans
MH  - Interpersonal Relations
MH  - Interview, Psychological
MH  - Male
MH  - Nervous System Diseases/*physiopathology/*psychology
MH  - Psychometrics
MH  - *Quality of Life
MH  - Sex Factors
MH  - Surveys and Questionnaires
PMC - PMC3889669
MID - NIHMS515074
OID - NLM: NIHMS515074
OID - NLM: PMC3889669
EDAT- 2011/08/30 06:00
MHDA- 2012/07/21 06:00
CRDT- 2011/08/30 06:00
PHST- 2011/06/14 00:00 [accepted]
PHST- 2011/08/30 06:00 [entrez]
PHST- 2011/08/30 06:00 [pubmed]
PHST- 2012/07/21 06:00 [medline]
AID - 10.1007/s11136-011-9958-8 [doi]
PST - ppublish
SO  - Qual Life Res. 2012 Apr;21(3):475-86. doi: 10.1007/s11136-011-9958-8. Epub 2011
      Aug 27.