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Evaluation of item candidates for a diabetic retinopathy quality of life item bank.

Abstract We are developing an item bank assessing the impact of diabetic retinopathy (DR) on quality of life (QoL) using a rigorous multi-staged process combining qualitative and quantitative methods. We describe here the first two qualitative phases: content development and item evaluation.
PMID
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Authors

Mayor MeshTerms

Quality of Life

Surveys and Questionnaires

Keywords
Journal Title quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation
Publication Year Start




PMID- 23135924
OWN - NLM
STAT- MEDLINE
DCOM- 20140418
LR  - 20171101
IS  - 1573-2649 (Electronic)
IS  - 0962-9343 (Linking)
VI  - 22
IP  - 7
DP  - 2013 Sep
TI  - Evaluation of item candidates for a diabetic retinopathy quality of life item
      bank.
PG  - 1851-8
LID - 10.1007/s11136-012-0307-3 [doi]
AB  - PURPOSE: We are developing an item bank assessing the impact of diabetic
      retinopathy (DR) on quality of life (QoL) using a rigorous multi-staged process
      combining qualitative and quantitative methods. We describe here the first two
      qualitative phases: content development and item evaluation. METHODS: After a
      comprehensive literature review, items were generated from four sources: (1) 34
      previously validated patient-reported outcome measures; (2) five published
      qualitative articles; (3) eight focus groups and 18 semi-structured interviews
      with 57 DR patients; and (4) seven semi-structured interviews with diabetes or
      ophthalmic experts. Items were then evaluated during 3 stages, namely binning
      (grouping) and winnowing (reduction) based on key criteria and panel consensus;
      development of item stems and response options; and pre-testing of items via
      cognitive interviews with patients. RESULTS: The content development phase
      yielded 1,165 unique items across 7 QoL domains. After 3 sessions of binning and 
      winnowing, items were reduced to a minimally representative set (n = 312) across 
      9 domains of QoL: visual symptoms; ocular surface symptoms; activity limitation; 
      mobility; emotional; health concerns; social; convenience; and economic. After 8 
      cognitive interviews, 42 items were amended resulting in a final set of 314
      items. CONCLUSIONS: We have employed a systematic approach to develop items for a
      DR-specific QoL item bank. The psychometric properties of the nine QoL subscales 
      will be assessed using Rasch analysis. The resulting validated item bank will
      allow clinicians and researchers to better understand the QoL impact of DR and DR
      therapies from the patient's perspective.
FAU - Fenwick, Eva K
AU  - Fenwick EK
AD  - Department of Ophthalmology, Centre for Eye Research Australia, Royal Victorian
      Eye and Ear Hospital, University of Melbourne, 32 Gisborne St, East Melbourne,
      VIC, 3002, Australia.
FAU - Pesudovs, Konrad
AU  - Pesudovs K
FAU - Khadka, Jyoti
AU  - Khadka J
FAU - Rees, Gwyn
AU  - Rees G
FAU - Wong, Tien Y
AU  - Wong TY
FAU - Lamoureux, Ecosse L
AU  - Lamoureux EL
LA  - eng
PT  - Evaluation Studies
PT  - Journal Article
PT  - Research Support, Non-U.S. Gov't
DEP - 20121108
PL  - Netherlands
TA  - Qual Life Res
JT  - Quality of life research : an international journal of quality of life aspects of
      treatment, care and rehabilitation
JID - 9210257
SB  - IM
MH  - Diabetic Retinopathy/*psychology
MH  - Emotions
MH  - Focus Groups
MH  - Humans
MH  - Interviews as Topic
MH  - Outcome Assessment (Health Care)/*methods
MH  - Psychometrics/methods
MH  - Qualitative Research
MH  - *Quality of Life
MH  - *Surveys and Questionnaires
EDAT- 2012/11/09 06:00
MHDA- 2014/04/20 06:00
CRDT- 2012/11/09 06:00
PHST- 2012/10/29 00:00 [accepted]
PHST- 2012/11/09 06:00 [entrez]
PHST- 2012/11/09 06:00 [pubmed]
PHST- 2014/04/20 06:00 [medline]
AID - 10.1007/s11136-012-0307-3 [doi]
PST - ppublish
SO  - Qual Life Res. 2013 Sep;22(7):1851-8. doi: 10.1007/s11136-012-0307-3. Epub 2012
      Nov 8.