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Creutzfeldt-Jakob disease surveillance in Australia: update to December 2015.

Abstract Nation-wide surveillance of human transmissible spongiform encephalopathies (also known as prion diseases), the most common being Creutzfeldt-Jakob disease, is performed by the Australian National Creutzfeldt-Jakob Disease Registry, based at the University of Melbourne. Prospective surveillance has been undertaken since 1993 and over this dynamic period in transmissible spongiform encephalopathy research and understanding, the unit has evolved and adapted to changes in surveillance practices and requirements concomitant with the delineation of new disease subtypes, improvements in diagnostic capabilities and the overall heightened awareness of prion diseases in the health care setting. In 2015, routine national surveillance continued and this brief report provides an update of the cumulative surveillance data collected by the Australian National Creutzfeldt-Jakob Disease Registry prospectively from 1993 to December 2015, and retrospectively to 1970.
PMID
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Authors

Mayor MeshTerms

Registries

Keywords
Journal Title communicable diseases intelligence quarterly report
Publication Year Start




PMID- 28278413
OWN - NLM
STAT- MEDLINE
DA  - 20170309
DCOM- 20170317
LR  - 20170317
IS  - 1447-4514 (Print)
IS  - 1447-4514 (Linking)
VI  - 40
IP  - 3
DP  - 2016 Sep 30
TI  - Creutzfeldt-Jakob disease surveillance in Australia: update to December 2015.
PG  - E368-E376
AB  - Nation-wide surveillance of human transmissible spongiform encephalopathies (also
      known as prion diseases), the most common being Creutzfeldt-Jakob disease, is
      performed by the Australian National Creutzfeldt-Jakob Disease Registry, based at
      the University of Melbourne. Prospective surveillance has been undertaken since
      1993 and over this dynamic period in transmissible spongiform encephalopathy
      research and understanding, the unit has evolved and adapted to changes in
      surveillance practices and requirements concomitant with the delineation of new
      disease subtypes, improvements in diagnostic capabilities and the overall
      heightened awareness of prion diseases in the health care setting. In 2015,
      routine national surveillance continued and this brief report provides an update 
      of the cumulative surveillance data collected by the Australian National
      Creutzfeldt-Jakob Disease Registry prospectively from 1993 to December 2015, and 
      retrospectively to 1970.
FAU - Klug, Genevieve M
AU  - Klug GM
AD  - Research Assistant, Australian National Creutzfeldt-Jakob Disease Registry, The
      Florey Institute of Neurosciences and Mental Health, The University of Melbourne,
      Parkville, Victoria.
FAU - Boyd, Alison
AU  - Boyd A
AD  - Registry Co-ordinator, Australian National Creutzfeldt-Jakob Disease Registry,
      The Florey Institute of Neurosciences and Mental Health, The University of
      Melbourne, Parkville, Victoria.
FAU - Sarros, Shannon
AU  - Sarros S
AD  - Research Assistant, Australian National Creutzfeldt-Jakob Disease Registry, The
      Florey Institute of Neurosciences and Mental Health, The University of Melbourne,
      Parkville, Victoria.
FAU - Stehmann, Christiane
AU  - Stehmann C
AD  - Administrative Assistant, Australian National Creutzfeldt-Jakob Disease Registry,
      The Florey Institute of Neurosciences and Mental Health, The University of
      Melbourne, Parkville, Victoria.
FAU - Simpson, Marion
AU  - Simpson M
AD  - Neurologist, Australian National Creutzfeldt-Jakob Disease Registry, The Florey
      Institute of Neurosciences and Mental Health, The University of Melbourne,
      Parkville, Victoria.
FAU - McLean, Catriona A
AU  - McLean CA
AD  - Neuropathologist, Australian National Creutzfeldt-Jakob Disease Registry, The
      Florey Institute of Neurosciences and Mental Health, The University of Melbourne,
      Parkville, Victoria.
AD  - The Alfred Hospital, Department of Anatomical Pathology, Melbourne Victoria.
FAU - Masters, Colin L
AU  - Masters CL
AD  - Director, Australian National Creutzfeldt-Jakob Disease Registry, The Florey
      Institute of Neurosciences and Mental Health, The University of Melbourne,
      Parkville, Victoria.
FAU - Collins, Steven J
AU  - Collins SJ
AD  - Director, Australian National Creutzfeldt-Jakob Disease Registry, The Florey
      Institute of Neurosciences and Mental Health, The University of Melbourne,
      Parkville, Victoria.
LA  - eng
PT  - Journal Article
DEP - 20160930
PL  - Australia
TA  - Commun Dis Intell Q Rep
JT  - Communicable diseases intelligence quarterly report
JID - 101601804
RN  - 0 (14-3-3 Proteins)
SB  - IM
MH  - 14-3-3 Proteins/*cerebrospinal fluid
MH  - Aged
MH  - Australia/epidemiology
MH  - Creutzfeldt-Jakob Syndrome/cerebrospinal fluid/*diagnosis/*epidemiology/mortality
MH  - Disease Notification/methods/statistics & numerical data
MH  - Female
MH  - Humans
MH  - Incidence
MH  - Male
MH  - Middle Aged
MH  - Prospective Studies
MH  - Public Health Surveillance
MH  - *Registries
MH  - Retrospective Studies
MH  - Survival Analysis
EDAT- 2017/03/10 06:00
MHDA- 2017/03/18 06:00
CRDT- 2017/03/10 06:00
PST - epublish
SO  - Commun Dis Intell Q Rep. 2016 Sep 30;40(3):E368-E376.

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