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Accuracy of ethnicity data recorded in hospital-based patient clinical records and the Australia and New Zealand Dialysis and Transplant Registry.

Abstract Sustained health inequities are experienced by indigenous and minority populations. Accurate ethnicity data are fundamental to healthcare planning and provision and monitoring of health outcomes to address such inequities. This study investigated the accuracy of ethnicity data in a large clinical registry of end-stage kidney disease patients (the Australia and New Zealand Dialysis and Transplant Registry; ANZDATA) and hospital-based patient clinical records compared with self-reported ethnicity data collected in the 'Dialysis Outcomes in those aged ≥65 years' (DOS65+) study.
PMID
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Authors

Mayor MeshTerms
Keywords
Journal Title the new zealand medical journal
Publication Year Start




PMID- 28449018
OWN - NLM
STAT- In-Process
DA  - 20170427
LR  - 20170427
IS  - 1175-8716 (Electronic)
IS  - 0028-8446 (Linking)
VI  - 130
IP  - 1454
DP  - 2017 Apr 28
TI  - Accuracy of ethnicity data recorded in hospital-based patient clinical records
      and the Australia and New Zealand Dialysis and Transplant Registry.
PG  - 65-71
AB  - AIM: Sustained health inequities are experienced by indigenous and minority
      populations. Accurate ethnicity data are fundamental to healthcare planning and
      provision and monitoring of health outcomes to address such inequities. This
      study investigated the accuracy of ethnicity data in a large clinical registry of
      end-stage kidney disease patients (the Australia and New Zealand Dialysis and
      Transplant Registry; ANZDATA) and hospital-based patient clinical records
      compared with self-reported ethnicity data collected in the 'Dialysis Outcomes in
      those aged >/=65 years' (DOS65+) study. METHODS: Self-reported ethnicity data
      were collected, as per national guidelines, from DOS65+ participants and compared
      with ethnicity data recorded for these participants in ANZDATA and hospital-based
      patient clinical records. Ethnicities were first prioritised and then grouped
      into one of the following: European, Maori, Pacific, Asian and Other. Cohen's
      Kappa statistics were calculated to determine overall non-random agreement.
      Concordances for ethnic group categories were calculated. RESULTS: There was high
      concordance between self-reported ethnicity and ethnicity recorded in both the
      ANZDATA (kappa=0.95) and hospital-based patient clinical records (kappa=0.93).
      Concordances for ethnic group categories between datasets ranged from 86% to
      100%. CONCLUSION: Our findings show a high level of agreement for ethnicity
      recorded for end-stage kidney disease patients between the three datasets,
      suggesting robust data to support health planning and research. Despite this,
      alignment of ethnicity data collection methods, as per national guidelines,
      should occur for all databases used for research and clinical practice in New
      Zealand.
FAU - Page, Matthew
AU  - Page M
AD  - Medical Student, Ngai Tahu Maori Health Research Unit, Department of Preventive
      and Social Medicine, University of Otago, Dunedin.
FAU - Wyeth, Emma H
AU  - Wyeth EH
AD  - Senior Lecturer-Maori Health and Director, Ngai Tahu Maori Health Research Unit, 
      Department of Preventive and Social Medicine, University of Otago, Dunedin.
FAU - Samaranayaka, Ari
AU  - Samaranayaka A
AD  - Senior Research Fellow, Department of Preventive and Social Medicine, University 
      of Otago, Dunedin.
FAU - McNoe, Bronwen
AU  - McNoe B
AD  - Research Fellow, Department of Preventive and Social Medicine, University of
      Otago, Dunedin.
FAU - Walker, Rachael
AU  - Walker R
AD  - Nurse Practitioner, Hawke's Bay District Health Board, Hawke's Bay and PhD
      candidate, University of Sydney, Sydney, Australia.
FAU - Schollum, John
AU  - Schollum J
AD  - Nephrologist, Department of Medicine, University of Otago, Dunedin.
FAU - Marshall, Mark
AU  - Marshall M
AD  - Nephrologist, Department of Renal Medicine, Middlemore Hospital, Auckland, and
      School of Medicine, University of Auckland, Auckland.
FAU - Walker, Robert
AU  - Walker R
AD  - Nephrologist, Department of Medicine, University of Otago, Dunedin.
FAU - Derrett, Sarah
AU  - Derrett S
AD  - Associate Professor and Director, Injury Prevention Research Unit, Department of 
      Preventive and Social Medicine, University of Otago, Dunedin.
LA  - eng
PT  - Journal Article
DEP - 20170428
PL  - New Zealand
TA  - N Z Med J
JT  - The New Zealand medical journal
JID - 0401067
COI - Dr Derrett reports grants, personal fees and non-financial support from EuroQol
      Group outside the submitted work. Mr Page reports affiliation with Otago Medical 
      Research Foundation-Lions Club of Dunedin South Summer Scholarship during the
      conduct of the study. Ms Walker reports grants from NZ Lotteries Health Research,
      grants from Baxter Health Care Research Programme, grants from University of
      Sydney APA Scholarship outside the submitted work. Mark Marshall is a full
      employee of Baxter Healthcare (Asia) Pte Ltd, Singapore.
EDAT- 2017/04/28 06:00
MHDA- 2017/04/28 06:00
CRDT- 2017/04/28 06:00
PST - epublish
SO  - N Z Med J. 2017 Apr 28;130(1454):65-71.

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