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Health promotion in families with paramyloidosis: the role of elders with younger family members.

Abstract Citizens are now partners in the formal health promotion system. In the management of hereditary diseases, the role of family members is a vital source of support. Elders play a crucial role due to their long relationship with the disease and with patients in the family. However, this role has still been insufficiently explored, particularly in genetic disorders like paramyloidosis. This exploratory qualitative study analyzes the role of elders in families with paramyloidosis, in health promotion for younger members. The critical incidents technique was applied using a semi-structured interview. The study involved 18 participants who reported 76 critical incidents. The interviews were taped and submitted to content analysis. The principal results suggest the following roles for elders with younger family members: act as role models (in behaviors), encourage, inform, and support. The older generations can be mobilized by health professionals as partners to support younger generations in families with paramyloidosis.
PMID
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Authors

Mayor MeshTerms

Health Promotion

Social Support

Keywords
Journal Title cadernos de saude publica
Publication Year Start




PMID- 28614454
OWN - NLM
STAT- MEDLINE
DA  - 20170614
DCOM- 20170705
LR  - 20170705
IS  - 1678-4464 (Electronic)
IS  - 0102-311X (Linking)
VI  - 33
IP  - 5
DP  - 2017 Jun 12
TI  - [Health promotion in families with paramyloidosis: the role of elders with
      younger family members].
PG  - e00185515
LID - S0102-311X2017000505008 [pii]
LID - 10.1590/0102-311X00185515 [doi]
AB  - Citizens are now partners in the formal health promotion system. In the
      management of hereditary diseases, the role of family members is a vital source
      of support. Elders play a crucial role due to their long relationship with the
      disease and with patients in the family. However, this role has still been
      insufficiently explored, particularly in genetic disorders like paramyloidosis.
      This exploratory qualitative study analyzes the role of elders in families with
      paramyloidosis, in health promotion for younger members. The critical incidents
      technique was applied using a semi-structured interview. The study involved 18
      participants who reported 76 critical incidents. The interviews were taped and
      submitted to content analysis. The principal results suggest the following roles 
      for elders with younger family members: act as role models (in behaviors),
      encourage, inform, and support. The older generations can be mobilized by health 
      professionals as partners to support younger generations in families with
      paramyloidosis.
FAU - Oliveira, Carla Roma
AU  - Oliveira CR
AD  - Associacao dos Lares Ferroviarios, Entroncamento, Portugal.
AD  - Universidade de Aveiro, Aveiro, Portugal.
FAU - Mendes, Alvaro
AU  - Mendes A
AD  - i3S Instituto de Investigacao e Inovacao em Saude, UnIGENe, Porto, Portugal.
AD  - Instituto de Biologia Molecular e Celular, Universidade do Porto, Porto,
      Portugal.
FAU - Sousa, Liliana
AU  - Sousa L
AD  - Universidade de Aveiro, Aveiro, Portugal.
LA  - por
PT  - Journal Article
TT  - Promocao da saude em familias com paramiloidose: papeis dos mais velhos junto dos
      mais novos.
DEP - 20170612
PL  - Brazil
TA  - Cad Saude Publica
JT  - Cadernos de saude publica
JID - 8901573
SB  - IM
MH  - Adolescent
MH  - Adult
MH  - Aged
MH  - Amyloid Neuropathies, Familial/*psychology
MH  - Brazil
MH  - Family/*psychology
MH  - Female
MH  - *Health Promotion
MH  - Humans
MH  - Male
MH  - Middle Aged
MH  - Qualitative Research
MH  - *Social Support
MH  - Young Adult
EDAT- 2017/06/15 06:00
MHDA- 2017/07/06 06:00
CRDT- 2017/06/15 06:00
PHST- 2015/11/09 [received]
PHST- 2016/07/20 [accepted]
AID - S0102-311X2017000505008 [pii]
AID - 10.1590/0102-311X00185515 [doi]
PST - epublish
SO  - Cad Saude Publica. 2017 Jun 12;33(5):e00185515. doi: 10.1590/0102-311X00185515.