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The Role of the Clinical Nurse Specialist From the Perspective of Parents of Children Born With Cleft Lip and/or Palate in the United Kingdom: A Qualitative Study.

Abstract This qualitative study explores parents' perspectives of the clinical nurse specialist (CNS) after diagnosis of cleft lip and/or palate and while preparing for/after lip or palate closure and other events on the cleft treatment pathway in the United Kingdom.
PMID
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Authors

Mayor MeshTerms

Nurse Clinicians

Keywords
Journal Title clinical nurse specialist cns
Publication Year Start




PMID- 29621107
OWN - NLM
STAT- MEDLINE
DCOM- 20180412
LR  - 20180412
IS  - 1538-9782 (Electronic)
IS  - 0887-6274 (Linking)
VI  - 32
IP  - 3
DP  - 2018 May/Jun
TI  - The Role of the Clinical Nurse Specialist From the Perspective of Parents of
      Children Born With Cleft Lip and/or Palate in the United Kingdom: A Qualitative
      Study.
PG  - 121-128
LID - 10.1097/NUR.0000000000000371 [doi]
AB  - PURPOSE/AIM: This qualitative study explores parents' perspectives of the
      clinical nurse specialist (CNS) after diagnosis of cleft lip and/or palate and
      while preparing for/after lip or palate closure and other events on the cleft
      treatment pathway in the United Kingdom. DESIGN: Parents with children on the
      "cleft treatment pathway" were recruited from multiple regions across the United 
      Kingdom. In-depth interviews were conducted with 24 parents of children born with
      cleft lip and/or palate. METHODS: Thematic analysis identified 4 key themes:
      relationship with CNS, information provision, preoperative care and
      multidisciplinary team (MDT), and postoperative support. RESULTS: Clinical nurse 
      specialists are a highly valued point of contact and act as a trusted mediator
      between parents and other professionals in the MDT. Clinical nurse specialists
      are important gatekeepers in providing support and information and developing
      trust after diagnosis and birth and throughout the cleft treatment pathway.
      CONCLUSION: The present findings affirm the emotional, social, and informational 
      support that the CNS can offer parents whose children are on a cleft treatment
      pathway. The CNS is a vital member of the cleft service MDT.
FAU - Searle, Aidan
AU  - Searle A
AD  - Author Affiliations: Senior Re!search Associate (Dr Searle), Education and
      Research Centre, NIHR Biomedical Research Centre (Nutrition Theme), Bristol;
      Lecturer in Social Sciences (Dr Neville) and Senior Lecturer in Social Sciences
      (Dr Waylen), Faculty of Health Sciences, Bristol Dental School, University of
      Bristol; and Senior Research Lead (Dr Ryan), Nuffield Department of Primary Care 
      Health Sciences, University of Oxford, United Kingdom.
FAU - Neville, Patricia
AU  - Neville P
FAU - Ryan, Sara
AU  - Ryan S
FAU - Waylen, Andrea
AU  - Waylen A
LA  - eng
PT  - Journal Article
PL  - United States
TA  - Clin Nurse Spec
JT  - Clinical nurse specialist CNS
JID - 8709115
SB  - N
MH  - Adolescent
MH  - Adult
MH  - Child
MH  - Child, Preschool
MH  - Cleft Lip/diagnosis/*nursing
MH  - Cleft Palate/diagnosis/*nursing
MH  - Female
MH  - Humans
MH  - Infant
MH  - Male
MH  - Middle Aged
MH  - *Nurse Clinicians
MH  - Nurse's Role/*psychology
MH  - Nurse-Patient Relations
MH  - Parents/*psychology
MH  - Qualitative Research
MH  - United Kingdom
MH  - Young Adult
EDAT- 2018/04/06 06:00
MHDA- 2018/04/13 06:00
CRDT- 2018/04/06 06:00
PHST- 2018/04/06 06:00 [entrez]
PHST- 2018/04/06 06:00 [pubmed]
PHST- 2018/04/13 06:00 [medline]
AID - 10.1097/NUR.0000000000000371 [doi]
AID - 00002800-201805000-00007 [pii]
PST - ppublish
SO  - Clin Nurse Spec. 2018 May/Jun;32(3):121-128. doi: 10.1097/NUR.0000000000000371.